‘Missing him is such a sad thing’
(3 of 4) “Weston got sick all of a sudden. It happened so fast that we feel like we didn’t really get to say goodbye like if he would have been ill for a while. “He...
(3 of 4) “Weston got sick all of a sudden. It happened so fast that we feel like we didn’t really get to say goodbye like if he would have been ill for a while. “He...
(2 of 4) “I knew that some kids with EB would die young, so I was always concerned. But I never wanted Weston to miss anything, worrying that it would be his last school party, last...
(1 of 4) “Weston was born with recessive dystrophic epidermolysis bullosa. It’s a rare hereditary skin disorder that’s incurable. His skin was very thin and fragile, and it would blister easily. Things that wouldn’t even scratch...
“2020, and with it COVID-19, caused severe strife and strain in many people’s lives. From the loss of a loved one or a job, to financial issues, it was definitely a tough year. For some of...
“The other night we went to dinner at Floyd’s. When we walk into places, we tend to catch the eyes of others. It doesn’t bother me. I can imagine they are worried that all these kids...
“‘We have to let our hearts break.’ I heard Mariann Edgar Budde, Episcopal bishop of Washington, D.C., say this recently. And whoa, I felt that. For me, 2020 started in a state of grief. Just a...
“The pandemic hit the gig worker very hard. Normally, as a magician, I would be wrapping up a busy season of magic shows for parties. But no parties means no need for entertainment. “I usually perform...
“When the initial shutdown began in mid-March, I was seven months pregnant, and my sister was due to deliver her first baby any day. It was a time full of excitement, of course, but also a...
“When my husband and I walked into labor and delivery, I knew our lives were about to change forever. But I had no idea the world would be shut down when we left the hospital with...
“It was a couple months after hearing of the coronavirus that I really began to sit up and take notice. The case numbers kept rising. Worse than that, the death numbers were rising at an alarming...