(2 of 4) “I knew that some kids with EB would die young, so I was always concerned. But I never wanted Weston to miss anything, worrying that it would be his last school party, last band concert, last time bowling....
(1 of 4) “Weston was born with recessive dystrophic epidermolysis bullosa. It’s a rare hereditary skin disorder that’s incurable. His skin was very thin and fragile, and it would blister easily. Things that wouldn’t even scratch us could tear his skin....
“2020, and with it COVID-19, caused severe strife and strain in many people’s lives. From the loss of a loved one or a job, to financial issues, it was definitely a tough year. For some of us, though, 2020 didn’t create...
“The other night we went to dinner at Floyd’s. When we walk into places, we tend to catch the eyes of others. It doesn’t bother me. I can imagine they are worried that all these kids will be disruptive. “When we...
“‘We have to let our hearts break.’ I heard Mariann Edgar Budde, Episcopal bishop of Washington, D.C., say this recently. And whoa, I felt that. For me, 2020 started in a state of grief. Just a few months prior, I lost...
“The pandemic hit the gig worker very hard. Normally, as a magician, I would be wrapping up a busy season of magic shows for parties. But no parties means no need for entertainment. “I usually perform for the Houston Children’s Museum...
“When the initial shutdown began in mid-March, I was seven months pregnant, and my sister was due to deliver her first baby any day. It was a time full of excitement, of course, but also a lot of uncertainty — the...
“When my husband and I walked into labor and delivery, I knew our lives were about to change forever. But I had no idea the world would be shut down when we left the hospital with our girl. “Sloane Pepper was...
“It was a couple months after hearing of the coronavirus that I really began to sit up and take notice. The case numbers kept rising. Worse than that, the death numbers were rising at an alarming rate. I’ve been retired 17...
“The pandemic has made a lot of families change the way they see or do things. As a family to a medically complex child, we haven’t had to change much in our regular routine or way of life. To protect Owen...
