“In 2009, I was raising my kids. I was doing weddings. I was teaching group fitness. I was doing all this stuff, then my voice kept going out. “I was a fitness instructor for 17 years. So I had a lot of vocal cord abuse. … Continue readingChronic health struggles can’t stop her
“One thing I’ve learned is to never feel like everything is OK. It was March this year when the majority of extra nurses — travelers like me — were sent back home. We all thought COVID was finally settling down or somewhat over. It took … Continue reading‘COVID has let us know exactly how mortal we are’
“I used to be a national sales manager for dehumidification. We dried out large commercial buildings in the U.S. and all over the world. I had to resign because of medical issues: muscular dystrophy. “It’s a genetic family thing. We have a particular type of … Continue readingHe’s come to terms with muscular dystrophy
(4 of 4) “Everything I see and hear makes me think of Weston. It’s hard to pick out a specific memory since they are all important to me. “My husband, Chris, and Weston loved hunting together. They built a gaming PC together. Then Weston picked … Continue readingTaking care of son ‘best job I ever had’
(3 of 4) “Weston got sick all of a sudden. It happened so fast that we feel like we didn’t really get to say goodbye like if he would have been ill for a while. “He had a good checkup on a Friday, and he … Continue reading‘Missing him is such a sad thing’
(2 of 4) “I knew that some kids with EB would die young, so I was always concerned. But I never wanted Weston to miss anything, worrying that it would be his last school party, last band concert, last time bowling. “Some kids with EB … Continue reading‘It was sad each time a finger became useless’
(1 of 4) “Weston was born with recessive dystrophic epidermolysis bullosa. It’s a rare hereditary skin disorder that’s incurable. His skin was very thin and fragile, and it would blister easily. Things that wouldn’t even scratch us could tear his skin. “He wore bandages daily … Continue readingRare skin disorder never-ending battle
Before our coronavirus staycation began in earnest, me and the Mrs. escaped for a quick trip east of our Baytown home to check out a few of our favorite things. In one day we hit up Sea Rim State Park in Sabine Pass, Village Creek … Continue readingBrief escape from the coronavirus
“It’s been 16 months since I was diagnosed with GBS (Guillain-Barré syndrome). Little by little, I’m regaining everything. I still have nerve pain in my neck, my face and legs. They told me that I will probably always have some nerve pain, even when I’m … Continue readingHe’s working hard to leave that wheelchair
“Two years ago, I took my daughters to the Daddy and Me Dance. I rented this big Mercedes limousine. I went all out for my girls, and they had a blast. I couldn’t do it last year because I was in a hospital bed. I … Continue readingDad overcomes to dance with his girls