Chronic health struggles can’t stop her
“In 2009, I was raising my kids. I was doing weddings. I was teaching group fitness. I was doing all this stuff, then my voice kept going out. “I was a fitness instructor for 17 years....
Tagged: illness
‘COVID has let us know exactly how mortal we are’
“One thing I’ve learned is to never feel like everything is OK. It was March this year when the majority of extra nurses — travelers like me — were sent back home. We all thought COVID...
He’s come to terms with muscular dystrophy
“I used to be a national sales manager for dehumidification. We dried out large commercial buildings in the U.S. and all over the world. I had to resign because of medical issues: muscular dystrophy. “It’s a...
Taking care of son ‘best job I ever had’
(4 of 4) “Everything I see and hear makes me think of Weston. It’s hard to pick out a specific memory since they are all important to me. “My husband, Chris, and Weston loved hunting together....
‘Missing him is such a sad thing’
(3 of 4) “Weston got sick all of a sudden. It happened so fast that we feel like we didn’t really get to say goodbye like if he would have been ill for a while. “He...
‘It was sad each time a finger became useless’
(2 of 4) “I knew that some kids with EB would die young, so I was always concerned. But I never wanted Weston to miss anything, worrying that it would be his last school party, last...
Rare skin disorder never-ending battle
(1 of 4) “Weston was born with recessive dystrophic epidermolysis bullosa. It’s a rare hereditary skin disorder that’s incurable. His skin was very thin and fragile, and it would blister easily. Things that wouldn’t even scratch...
Brief escape from the coronavirus
Before our coronavirus staycation began in earnest, me and the Mrs. escaped for a quick trip east of our Baytown home to check out a few of our favorite things. In one day we hit up...
He’s working hard to leave that wheelchair
“It’s been 16 months since I was diagnosed with GBS (Guillain-Barré syndrome). Little by little, I’m regaining everything. I still have nerve pain in my neck, my face and legs. They told me that I will...
Dad overcomes to dance with his girls
“Two years ago, I took my daughters to the Daddy and Me Dance. I rented this big Mercedes limousine. I went all out for my girls, and they had a blast. I couldn’t do it last...
