Taking care of son ‘best job I ever had’

by David Berkowitz · January 12, 2021

(4 of 4)

“Everything I see and hear makes me think of Weston. It’s hard to pick out a specific memory since they are all important to me.

“My husband, Chris, and Weston loved hunting together. They built a gaming PC together. Then Weston picked out parts and bought them to help his friend, Cody, build one as a surprise. Weston loved Christmas. Each year now, we’ve been giving gifts to other young men with EB, teens and 20s we know from Facebook. I feel sorry for them because I know what their life is like, and we want to help make them smile.

“After our house flooded in 2017 because of Hurricane Harvey, we had to live in an apartment for over a year until our house was fixed. We got Weston a kitten, Ricky Bobby, in June 2018. It gave him something to smile about while he was stuck in his wheelchair in that tiny place.

“Even though it was a challenging situation for the three of us there, I’m thankful that I got to spend so much time with him. I wasn’t working the last few years of his life, so I got to take care of him. It was the best job I ever had. Weston was the best boss.

“I would love to go back and live in that little apartment with him like we did after the flood. If I could have him back, I’d live there forever.”

— Dana Zucha

• ‘It was sad each time a finger became useless’

• ‘Missing him is such a sad thing’